Non-Hemophilia MADNESS


I am always prepared for a bleed. I keep a stock of medical supplies, a hospital bag in the car and I make sure everyone around us knows about Anthony’s condition and what it could mean for him should something bad happen. What I am not prepared for is something non hemophilia related to happen.

Michael has surgery 3 weeks ago to move his…’boys’ ….into the correct location. Recovery went great, Michael was a champ and our follow-up went without a hitch, that is until last night. He has developed an abscess both on his upper thigh and underneath the incision. OMG What do I do! Hospital? That seems a bit rash… Pediatrician? Its Friday I don’t know how much they can really do for him…I guess both?

And so we load up, Anthony at school, and head to the pcp, who in turn sends us to the ER. At the ER they call the surgeon who did the procedure and debate a course of action. Geeze, men and their territory. They decide that Michael shouldn’t be opened up in both places but rather just on his thigh, wouldn’t want to open up old wounds so to speak. Now I have a baby with antibiotics, another incision on his body, and a whole new list of things to do if things go horribly wrong..did I mention I started a new job last week and have to work tonight? My god being a mom is busy work sometimes.

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Surgeries, Head Colds, and Planning on Being a Little Bit Selfish.


Waiting for his knock out medicine.

Michael had a minor operation on Monday. Basically his testicles didn’t descend into the sac and they moved them into the proper position. No big deal. In fact, I hear lots of boys have one or both testicles ectopic at birth. In the past 4 days he has been a joy. That is, until he caught a head cold. Colds are something I can also handle, I mean it’s not like this is my first time handing out baby Tylenol and giving snuggles but Anthony has a cold also and my husband, Sam, has pretty serious tooth  pain…at the same time. What does that mean for me? Load up on the coffee and plan my mommy day for about 2 weeks from now when everyone is back to normal. Don’t get me wrong Sam is helpful, in fact he stayed up with Michael until about 3am last night so I could get some sleep. Once he finally did get to bed though Anthony was up and wanting attention. Enter 4:14am grumpy mama. Oh you want juice? I’d like a full nights rest!! But I get him his juice, send him to the bathroom, check the fever and tuck him back in hoping everyone sleeps until 2pm the following day. Wishful thinking and it didn’t come true. Michael woke up in a very needy mood. I can only snuggle one of you at a time guys!

So I’ve decided that I’m going to do a bit of pre-planning in the future.

Mama’s need to be a little selfish sometimes. I have joined a virtual book club, nothing serious, just a book a month and I’m going to set aside at least 2 days a month to do something for me-alone. No cooking dinner, no giving baths, no driving anyone to anything, no working, no studying, just mama’s day to be Sarah. I don’t know what exactly I’ll do on those days; maybe sit in the library and read or go catch a movie. As important as our date nights are and as much as I love having a family day out somewhere everyone needs a moment to be alone. Taking care of myself makes me able to take care of my family and unless I really try to schedule that time I end up spending the day on the couch watching Thomas the Tank Engine between loads of laundry.

I’ve also been toying around with the idea of planning a meetup for us hemo moms. Outside of the events relating to our community. Maybe a halfway point where we can get the kids together and get to know each other besides over the internet. Now since I don’t have money for a serious vacation except once in a blue moon this will have to be limited to people in the Central/North Florida regions. Let me know what you guys think! As always you can reach me via email; hemophiliaandhim@gmail.com on facebook or on here.

New Milestones for Anthony.


Today Anthony left his trike behind and moved on to a big boy bike. It was a little rough at first but with a little help from Dad he was soon pedalling like a pro. I love listening to him work things out “Up and down, push up and down, up and down.” as he learns a new skill. There was a time when I didn’t think he would ever be able to ride a bike because of hemophilia and now I am so gracious that we have made the medical advances that we have. Anthony also has asked me to let him share a room with his baby brother, Michael. This being the second time he has requested it I took Michael’s crib and made the big move with him acrossed the hall so that it is no longer Anthony’s Room but Anthony & Michael’s Room.

Motherhood is 18 years of learning to let go.