Waiting for his knock out medicine.
Michael had a minor operation on Monday. Basically his testicles didn’t descend into the sac and they moved them into the proper position. No big deal. In fact, I hear lots of boys have one or both testicles ectopic at birth. In the past 4 days he has been a joy. That is, until he caught a head cold. Colds are something I can also handle, I mean it’s not like this is my first time handing out baby Tylenol and giving snuggles but Anthony has a cold also and my husband, Sam, has pretty serious tooth pain…at the same time. What does that mean for me? Load up on the coffee and plan my mommy day for about 2 weeks from now when everyone is back to normal. Don’t get me wrong Sam is helpful, in fact he stayed up with Michael until about 3am last night so I could get some sleep. Once he finally did get to bed though Anthony was up and wanting attention. Enter 4:14am grumpy mama. Oh you want juice? I’d like a full nights rest!! But I get him his juice, send him to the bathroom, check the fever and tuck him back in hoping everyone sleeps until 2pm the following day. Wishful thinking and it didn’t come true. Michael woke up in a very needy mood. I can only snuggle one of you at a time guys!
So I’ve decided that I’m going to do a bit of pre-planning in the future.
Mama’s need to be a little selfish sometimes. I have joined a virtual book club, nothing serious, just a book a month and I’m going to set aside at least 2 days a month to do something for me-alone. No cooking dinner, no giving baths, no driving anyone to anything, no working, no studying, just mama’s day to be Sarah. I don’t know what exactly I’ll do on those days; maybe sit in the library and read or go catch a movie. As important as our date nights are and as much as I love having a family day out somewhere everyone needs a moment to be alone. Taking care of myself makes me able to take care of my family and unless I really try to schedule that time I end up spending the day on the couch watching Thomas the Tank Engine between loads of laundry.
I’ve also been toying around with the idea of planning a meetup for us hemo moms. Outside of the events relating to our community. Maybe a halfway point where we can get the kids together and get to know each other besides over the internet. Now since I don’t have money for a serious vacation except once in a blue moon this will have to be limited to people in the Central/North Florida regions. Let me know what you guys think! As always you can reach me via email; firstname.lastname@example.org on facebook or on here.
It’s moving week! I have managed to get all of the doctors sorted out for Anthony and Michael. They will be able to see the same pediatrician! I still have to get factor sent to the new address. Since we aren’t getting prophylaxis we only have 2 doses on hand and in general I like to have more than that. You never know when a small bleed means sleeping on a cot on the hemotology/oncology floor at the hospital. I am leaving this evening but the boys won’t join me until Wednesday night and Sam can’t come until next Thursday. It’ll give me time to get everything set up for them but I’ll still miss all my guys. It’s a weird transition going from stay at home mom to working mom.
Anthony got to go to Disney yesterday. We live very close to Disney so
Our last Disney trip in February.
this isn’t an unusual thing for him but he still loves it all the same. He came home last night raving about all the characters he got to meet and hug and dance with, apparently Pluto licked his face a lot. I don’t have any pictures yet because the camera isn’t developed but I will be sure to post them when I do.
I have been studying like crazy to take a college placement test. I plan to start school in January to become a nurse. Given the situation I feel like that is the best career path for my family, especially Anthony. And it will give me some peace of mind knowing that I am more than qualified to handle his care without constantly second guessing myself.
Sill expanding on our Facebook page I am happy to report. We have now reached 5 countries! And I have finally been contacted by another hemo mom. I’m absolutely thrilled about this! She doesn’t live in Florida and her son doesn’t have type B but I feel like she is still someone I can relate to and that is what I’ve been missing. Ideally a little boy with hemophilia type B severe age 3 would just pop right out of nowhere and instantly become Anthony’s best friend, but I’m guessing that won’t happen any time soon lol. For now we will just keep on searching. I love that the internet makes the world small and that it is possible to connect with people who are far away. Keep on sharing.
Anthony on the boat.
Yesterday we celebrated my nephew, Mason, turning 2! Anthony had so much fun but we did have to cut it short when the presents rolled out he decided to open them all for Mason. They had pool time fun, we went out on Grandaddy’s boat [Anthony had to skip the tubing and I’m now glad he did because my legs are bruised] and had CAKE! Michael got to meet the family for the 1st time. And of course he was a little perfect gentleman showing his dimples off every chance he got..or sleeping lol but those ladies loved him either way. Being out and about is a little stressful for me sometimes. We have to watch the bottoms of Anthony’s feet int he pool to make sure they don’t get rubbed to raw. He can’t participate in tubing when we go on the boat because it would
my step-brother Andrew tubing
bruise him too much. When he throws himself around during a temper tantrum I just want to wrap him up in bubble wrap. I don’t even want to think about him getting sun burnt.
[shudder] But it’s all worth it to see him having fun and enjoying the good times. My hope is that as he grows it isn’t a big deal to him and that he is able to have fun without feeling like he has to be on guard every second. I know I should hope for a good balance of him having fun and being aware but really I hope that sometimes he can just forget.
I have decided to work on the Committee for the Holiday Walk in December. I am so excited to be a part of something and really be working for change. I cannot wait for Anthony to be out there doing something even if he doesn’t know that it is for him. Let me know if anyone is interested in walking with us or donating to the cause.
We are moving in just a couple of weeks! I’m not sure about the exact day because I have to work a few events and I do not know who is watching the boys yet. The first load of our things got there and is all put away. Just have to bring clothes, toys and a crib and I will no longer be living in my hometown. I don’t even have to wrap my head around this I’m just so excited about moving I can hardly contain myself. The closer we get the more antsy I am. This last week in July I have always felt like was the end of summer. It’s time to get ready for the beginning of something new and for us this year it’s the beginning of a new chapter in our lives.
our June/July adventures were few and yet fantastic