I am Sarah. I am a single mom of 2. The eldest was diagnosed with hemophilia B severe at a week old. The other is free of my damaged X chromosomes.

Anthony Isaiha will be 5 in October. It will also mark 5 years since he made me a stronger woman than I thought possible. He has hemophilia B severe, meaning his blood does not clot. Only 1 in every 30,000 boys born has this disorder and so a lot of people aren’t even aware that the disorder exists. This is my life as a cook, dietician, driver, personal stylist, appointment scheduler, teacher, disciplinarian, and nurse. This is my life as a mom.
“Life is an occasion; rise to it”

8 thoughts on “Us.

  1. Really like the start of your blog. I am a 43 yr old hemophiliac and glad to see you sharing your experience online. If you would be interested I would like to include your blog posts on a new Hemophilia Community website I am creating. email me directly and I will send you details.


      • Works well! It is not obvious, thuogh. Will new users know to click on the yellow bubble or time stamp?Within the thread itself, perhaps you can put the same yellow bubble next to the title of the thread to keep things consistent? Maybe a yellow bubble with a down arrow?

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  2. Rob-I simply can’t eebilve that you’re not on Facebook. That’s where ALL the networking is happening for authors and journlists these days. It’s an amazing tool for getting you and your writings noticed.Look me up at Facebook, and read my friends list. You’ll see what I mean.Let me know when you open your Facebook site.Deborah

    • Posted on I’d must test with you here, which isn’t something I usllauy do! I get pleasure from reading a post that will make folks think. Thanks for permitting me to remark!

  3. I moved away from my main group of friends a nubemr of years ago because of work, and our lives have all taken many twists and turns since such that we have all found maintaining our friendships at their previous level difficult. I still miss these friends and though I have made others, these friendships do not seem to have the same depth and it is not just because they are newer. As I get older, I find that people seem to have less time and energy for friendship among the competing demands of work and family, and I find this sad although I am guilty of it also. When I moved here, I also met some people who I felt offered potential as friends, but they seemed to already have as many friends as they could cope with and were not really interested in including any more. I would do anything to help my friends, but I could not say the same of all of them. However, one of the pleasures of getting older is that one gets more philosophical about peoples’ capabilities and alters expectations accordingly. My husband remains my best friend and our relationship compensates much for any perceived shortcomings of others. I have also had the enjoyment of forging much better relationships with siblings and some relatives as we have all “grown up” a bit.

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