I am Sarah. I am a single mom of 2. The eldest was diagnosed with hemophilia B severe at a week old. The other is free of my damaged X chromosomes.
Anthony Isaiha will be 5 in October. It will also mark 5 years since he made me a stronger woman than I thought possible. He has hemophilia B severe, meaning his blood does not clot. Only 1 in every 30,000 boys born has this disorder and so a lot of people aren’t even aware that the disorder exists. This is my life as a cook, dietician, driver, personal stylist, appointment scheduler, teacher, disciplinarian, and nurse. This is my life as a mom.
“Life is an occasion; rise to it”